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Pam Hallman to Meet with the U.S. Congressional Brain Injury Task Force13-Oct-2017

On October 25, our own Pam Hallman has been chosen to represent domestic violence and brain injury survivors across the country in front of the U.S. Congressional Brain Injury Task Force at a brie.. Read More...

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Research Partnerships

As the Brain Injury Association of Michigan believes that research is critically important to the long term needs of people with brain injuries, we have specifically included research as part of our mission statement. Our mission statement reads "to improve the lives of those affected by brain injury and to reduce the incidence and impact of brain injury through education, advocacy, support, treatment services, and research.". The Association has limited ability to be actively involved in research, and therefore, encourages and assists in research by representing its interest in brain injury through participation in state and regional research projects, including state Southeastern Michigan Traumatic Brain Injury System (SEMTBIS), Ohio Regional TBI Model System, Protection and Advocacy Services (MPAS),and the Traumatic Brain Injury Model Systems (TBIMS).

Southeastern Michigan Traumatic Brain Injury System (SEMTBIS) ↓

(Partners: Wayne State University, Rehabilitation Institute of Michigan)

The Southeastern Michigan Traumatic Brain Injury System (SEMTBIS), housed at the Rehabilitation Institute of Michigan, is a program of research that studies a variety of topics related to TBI recovery and outcome. Since 1987 SEMTBIS has conducted innovative research projects and contributed to the establishment and maintenance of a standardized National Database for analysis of TBI treatment and outcomes. At SEMTBIS we are involved in local and collaborative research efforts. Our research findings are shared with TBI survivors, families, caregivers, and health care professionals locally, nationally, and internationally. The SEMTBIS has two main research projects and will contribute to two TBIMS module projects. Additionally, the SEMTBIS continues to participate in longitudinal data collection that is submitted quarterly to the TBIMS national database.

SEMTBIS, is a federally funded TBI "model system" (TBIMS) of care for individuals who sustain a traumatic brain injury and is a joint effort between Rehabilitation Institute of Michigan, Wayne State University's School of Medicine, and local acute care hospitals. The potential benefits of participation in a TBIMS include:

• Coordinated, more efficient care
• Cutting-edge treatment
• A smoother transition between hospitals
• Shorter hospital stays
• Lower hospital costs
• Continuous review of patient needs
• Specialized professionals working as a team
• Return to work and school services
• Coordinated home health care and outpatient therapy
• Case management from acute care to community re-entry.

The primary purpose of the SEMTBIS is to expand and enhance our comprehensive, multidisciplinary model system of care, largely through involvement in innovative research activities aimed to improve outcomes for persons with TBI and their families. Research findings are utilized to develop, implement, and improve current intervention strategies, as well as to create and expand service delivery options. SEMTBIS conducts ground-breaking research in the field of physical medicine and rehabilitation, sharing the resulting innovations with other traumatic brain injury professionals and researchers throughout the world. This ongoing research is vital to future advances in the treatment of brain injury.

Currently Funded Projects
Utility of MRI Techniques in Prediction of TBI Outcome
This project aims to develop multivariable imaging models using three innovative techniques (i.e., Diffusion Tensor Imaging, Susceptibility Weighted Imaging, and Magnetic Resonance Spectroscopy), to improve the prediction of neurobehavioral and functional outcomes at two key time points – discharge from inpatient hospitalization and one year post injury. It will also examine the depth of lesion model, which assumes that the deeper the lesion the greater the disability.

Safety and Feasibility of Minocycline in the Treatment of TBI
This is a Phase IIa clinical drug trial designed to establish optimal dosage of minocycline given acutely following TBI. The study will gather preliminary functional outcome data in an attempt to conduct a clinical feasibility assessment with this drug. Minocycline is in the family of antibiotics and may act as a neuroprotectant agent following traumatic brain injury.

Collaborative Modules within the overall TBIMS Project
Sexuality after TBI
This project examines the frequency, type, and severity of changes in sexual function associated with TBI. Participants in this project will have been previously enrolled in the Southeastern Michigan Traumatic Brain Injury System and have agreed to answer various questionnaires related to sexual function following traumatic brain injury. They will answer questionnaires at two time points, 6 month and 1 year after having sustained a TBI.

Additional TBI Research at Rehabilitation Institute of Michigan
Neuroanatomical Correlates of Positive Psychology Among People with Traumatic Brain Injury: A Biopsychosocial Model – A NIDRR funded Field Initiated Research Project
The main objectives of this study are to identify how the images of the brain (MRI) relate to character strengths that underlie resiliency after traumatic brain injury (TBI) and the extent to which these characteristics relate to satisfaction with life and community integration. Participants in the research project will be 6 months to 2 years post injury after having sustained a traumatic brain injury.

Subjective Fatigue in Persons with TBI: A Collaborative Field Initiated Project with Santa Clara Valley Medical Center
Fatigue is one of the most commonly reported symptoms following TBI and is associated with increased depression, pain, sleep disorders, cognitive challenges and decreased quality of life. Although there are many scales to measure fatigue in other diagnostic groups, there have been no scales specifically for use in the TBI population, especially in the community setting.

This study will use existing fatigue scales to develop a valid, multidimensional assessment of fatigue for use with community-based individuals with TBI.

For more information about SEMTBIS and/or the TBIMS program, please contact Carole Koviak, RN, MSA, SEMTBIS Coordinator at (313) 745-9737.

The Ohio Regional Traumatic Brain Injury Model System ↓

The Traumatic Brain Injury (TBI) Model Systems program is funded by the National Institute on Disability and Rehabilitation Research (NIDRR) and has the mission to improve the quality of life of people who experience TBI and their families by creating and disseminating new knowledge about the course, treatment and outcomes of this condition. At the heart of the program is a long-term, longitudinal study of patients who receive rehabilitation for TBI. Consenting patients are followed 1, 2, 5, 10 and every 5 years thereafter to learn about the long-term effects of moderate and severe TBI. Founded in 1987, there are currently 16 TBI Model System centers around the country. The Ohio Regional TBI Model System was first selected a center in 1997 and has been continuously funded since that time.

The Ohio Regional TBI Model System is located in the Department of Physical Medicine and Rehabilitation at the Ohio State University Medical Center.  John D. Corrigan, PhD, is the Principal Investigator (PI), Jennifer Bogner, PhD, is the co-PI and Director of Research, and W. Jerry Mysiw, MD, is the Medical Director. The project operates under the umbrella of the Ohio Valley Center for Brain Injury Prevention and Rehabilitation, which provides a means for consumer participation via its 30-member Advisory Council.  Composed primarily of consumers from a multi-state region, the Advisory Council prioritizes needs, reviews funding opportunities, participates in grant implementation, monitors progress and evaluates program outcomes.

The Ohio Regional TBI Model System serves a catchment area consisting of 2.5 million people in a 25-county area covering central and southern Ohio. All three Level I trauma centers in the region, and one of two Level II centers, are participants in the Ohio Regional TBI Model System. Brain injury rehabilitation is provided in the 24-bed, CARF-accredited, specialized Brain Injury Unit in the OSU Department of Physical Medicine and Rehabilitation. Post-acute treatment and follow-up are provided through the department’s Brain Injury Clinic, the outpatient NeuroRehabilitation program, and the TBI Network, a specialized treatment program for persons with TBI and substance use disorders.

Over its 15 years of involvement in the TBI Model Systems Program, the Ohio Regional TBI Model System has recruited almost 850 patients into the National Dataset, and more than 400 5-year follow-ups have been completed. Among all centers, Ohio is the second largest contributor of completed follow-up interviews. By the end of the upcoming funding cycle we expect to be approaching 1,000 patients enrolled from the OSU Medical Center in the longitudinal study.

The Ohio Regional TBI Model System has made other valuable contributions to the TBI Model Systems via local and multi-center research projects and participation in leadership positions among the Model Systems Centers. For the current 5-year cycle of funding, Dr. Corrigan has been elected by his fellow Project Directors to Chair the TBI Model Systems Executive Committee. Among other responsibilities, he will represent the centers’ concerns to the public, funding bodies and other national organizations concerned with the long-term effects of TBI.

Michigan Protection and Advocacy Services (MPAS) ↓

(Partners: Michigan Protection and Advocacy)

What is Michigan Protection and Advocacy Service, Inc. (MPAS)
Michigan Protection and Advocacy Service, Inc. (MPAS) is the federally designated protection and advocacy (P&A) system in Michigan. The P&A system is a nationwide network of nonprofit corporations and state agencies providing information and advocacy to individuals with disabilities. Under federal law, each state and territory must designate a P&A program.

Federal mandates require that P&A programs have access to a full range of remedies for the individuals they serve, including information and referral, training, negotiation, monitoring, administrative actions, and legal remedies. In addition, Federal law gives P&A programs access to individuals, their records, and programs when necessary to carry out their mission of investigating and redressing abuse and neglect of P&A customers.

In Michigan, approximately fifty percent of people who sustain a TBI are covered by the auto no-fault law which can provide for a life-time of needed services and supports. Those who did not acquire brain injury through an auto accident depend on private insurance and/or the public heath system. For a person with a traumatic brain injury, accessing public services can be a difficult, and many times futile, process. Community Mental Health Service Programs (CMHSP's) provide local, public mental health services. Because CMHSP's do not have an identified funding source for serving people with TBI, individuals with TBI are often denied services stating that the person is not eligible because he or she does not have a developmental disability, serious emotional disturbance, or serious mental illness. Other public services may include services from the Department of Human Services (DHS), Michigan Commission for the Blind (MCB) or Michigan Rehabilitation Services (MRS).

Focus Areas
MPAS provides advocacy assistance for individuals with TBI on a wide array of issues. Some of those issues include accessing public services, advocating for community-based placements for individuals in congregate care settings (i.e. nursing homes, rehabilitation facilities), investigating allegations of abuse or neglect, accessing special education services for school-age individuals, accessing veterans services, and providing information & referral.

MPAS will address these focus areas in several ways: investigation, direct representation, training, technical assistance, information and referral, and system-based advocacy.

Traumatic Brain Injury Model System (TBIMS) ↓

The Traumatic Brain Injury Model System (TBIMS) program was created and funded by the National Institute on Disability and Rehabilitation Research (NIDRR) in 1987 to demonstrate the benefits of a coordinated system of neurotrauma and rehabilitation care and conduct innovative research on all aspects of care for those who sustain traumatic brain injuries. Each Center systematically collects important data about each individual who meets criteria for inclusion in the TBI National Database and sends this information to the TBI National Data & Statistical Center at Craig Hospital in Denver, CO.  The Centers are currently located at 16 sites throughout the United States that provide comprehensive systems of brain injury care to individuals who sustain a traumatic brain injury, from acute care through community re-entry. The mission of the TBIMS is to improve the lives of persons who experience traumatic brain injury, their families and communities by creating and disseminating new knowledge about the course, treatment and outcomes relating to their condition.

The Institute for Rehabilitation and Research (TIRR) ↓

The National Institute on Disability and Rehabilitation Research (NIDRR) has awarded the Brain Injury Research Center (BIRC) at TIRR Memorial Hermann a center grant to study community integration for persons with traumatic brain injury (TBI). This large grant designates BIRC as the only national Rehabilitation Research and Training Center (RRTC) on Developing Strategies to Foster Community Integration and Participation for Individuals With Traumatic Brain Injury. NIDRR RRTC sites conduct research projects but also provide education and technical assistance to persons with injury, family members, healthcare providers, and others. This the second community integration RRTC awarded to TIRR and the fourth TBI RRTC awarded to TIRR overall.